Haber has cystic fibrosis, a genetic disease that causes persistent infections and sticky buildup of mucus in the lungs, pancreas, and other organs. The California resident has spent most of her life in hospitals, but was hopeful after a recent lung transplant that she would live a long, healthy life with her partner, Bryan Takayama.
Your mind is a garden. Your thoughts are the seeds. You can grow flowers or you can grow leaves. || You must tell yourself, “no matter how hard it is, or how hard it gets, I’m going to make it” • Home safe and sound after the 7 hours car ride. Looking forward to a long night of rest before a full week of treatment, clinics, and tests! #Fight2Breathe #CysticFibrosis #65Roses #CureCF #CFAwareness #UNOS #OrganDonation #DonateLife #RecycleYourself #DoubleLungTransplant #HomeSweetHome #RoadTrip #Valencia #California #SanFrancisco
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 15, 2017 at 8:47pm PDT
However, just a week ago, Haber got the news that her body rejected the lungs, and with her health rapidly declining, doctors say she is not an ideal candidate for another transplant.
#Throwbacktuesday ???! I can’t resist! • This photo will forever symbolize one of the best moments in my life. October 20,2015, the morning I woke up with new lungs, a new perspective on life, and a new direction. This was the exact moment I realized I was breathing with new lungs and all the emotional and physical struggles were worth it! || Huge shout out to @letsrockcf for featuring me in this weeks blog post. Read about me and other cystas/fibros @ www.letsrockcf.org/blog/ ! Me “By far the largest goal for my future is to conquer another double-lung transplant; I am in full chronic rejection now. If I gain another set of lungs everything in life will fall behind. Such as marriage, children, career, writing a novel, and being present at all my loved one’s small and big moments.” #RockCF #Fight2Breathe #cysticfibrosis #65roses #curecf #cfawareness #UNOS #organdonation #donatelife #recycleyourself #doublelungtransplant #medicine #health #newlungs
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 17, 2017 at 8:35am PDT
“With low weight, failing kidneys, declining lung function, and [brittle] diabetes the doctors’ medical expertise tells them I’m not a candidate for surviving a double lung transplant,” she wrote on her Instagram. “‘If it was between giving myself and another person with better qualifications the single pair of lungs available, I too would be forced to agree that the more qualified person receive the lungs.”
Thursday morning I went into clinic with an optimistic mindset that a new path would be discovered leading to a positive outcome. However I was completely taken off guard when I heard the words I needed to be admitted for testing and monitoring. For a “Hail Mary” is what they called this admission. A series of testing the other organs in my body to see what the stress of my poor lung function is doing to them. After two days of testing my heart and working hard to recover my kidney function, I was discharged by my healthcare team telling me there is nothing else they can do to help me improve my health/quality of life. And that they stand by the decision that transplanting me would be setting me up for a battle I have no chance of winning. With low weight, failing kidneys, declining lung function, and bridle diabetes the doctors’ medical expertise tells them I’m not a candidate for surviving a double lung transplant. And honestly I can’t blame them. If it was between giving myself and another person with better qualifications the single pair of lungs available, I too would be forced to agree that the more qualified person receive the lungs. If they will last 1, 2, 5, or 10 years with new lungs and I’d only last hours or days it’s an obvious decision to save the other person. As a result of this prognosis, I’m now left with the “fight or flight” choice of what the next steps for my life should be – continue to work at changing centers’ mind to transplant me or live the rest of my days on my favorite Hawaiian island on palliative care. After a crazy, stressful, and busy 48 hours of high emotions and big decisions, Bryan and I have arrived home to sit down and brainstorm our options for our future. When you have a love as strong as we do one person’s downfall is also the others. We ride the wave of life together no matter how large or scary. So tonight we’ve devised a plan to put all our last eggs into living. #Fight2Breathe #CysticFibrosis #65Roses #CureCF #CFAwareness #UNOS #OrganDonation #DonateLife #RecycleYourself #doublelungtransplant #lovewins #organrejection #medicine #health
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 20, 2017 at 11:21pm PDT
The health problems didn’t stop her from getting married to the love of her life, Bryan Takayama, 25, who she met a year ago. The couple had originally planned an engagement party for Saturday, but with the help of friends and strangers, in just seven days, her engagement party turned into the fairy tale wedding of her dreams.
A post shared by Amy Tang (@yamytang) on Oct 28, 2017 at 6:43pm PDT
“When you have a love as strong as we do one person’s downfall is also the others,” Haber shared. “We ride the wave of life together no matter how large or scary. So tonight we’ve devised a plan to put all our last eggs into living.”
The bride getting ready for her groom! Thank you, @saltspellbeauty and @superflynails for your incredible artistry and making Caleigh feel like the most beautiful woman in the world #caleighsaysbrydo #fight2breathe
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 28, 2017 at 12:08pm PDT
A close friend set up a GoFund Me page to help Haber have the wedding and honeymoon she always wanted. On Saturday evening, that dream became a reality as Haber and Takayama said, “I do.”
To the love of my life || "On this day, I give you my whole heart. My promise to be faithful and supportive; and to always make our family's love and happiness my priority. I promise,that I will walk with you,Hand in hand, Wherever our journey leads us. Living, learning, and loving you. I will dream with you, celebrate with you and be your partner through whatever our lives may bring. I will always be honest with you, kind, patient and forgiving. I will comfort you when the Ohio State Buckeyes loose, I will give my shoulder when you're in conflict. I will always wait for you while you’re away for work. I vow be more selfless, more compassionate, more driven and more giving. Im sorry, my love, that you won’t always have me in your life, but I promise you every minute I’m alive I will dedicate myself to you. I will never stop fighting to stay alive. You inspire me to fight harder, to put myself through struggle, to look past chaos, to drink ensures and to take my medication. You have made me a better person, and I vow to continue to strive to be better every day. and the best wifey I can be to you. Forever and Always .”#caleighsaysbrydo #fight2breathe
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 28, 2017 at 4:58pm PDT
The GoFund me has surpassed the original $10,000 goal and is now at nearly $21,000. The newlyweds sent a heartfelt thank-you message to all those who contributed.
Haber wrote that she is “overwhelmed with emotion that you have all supported us and shown us unconditional love. As we begin this journey sharing a life together it is so important to have a village behind us.”
Countdown just began and we’re 3 days away… || To the world you may be one person but to one person you may be the world • Thanks for being my ride or die baby, @takayama.10 #WeddingCountdown #HereComesTheBride #WifeyWifeyWifey #Fight2Breathe #CysticFibrosis #65Roses #CureCF #CFAwareness #UNOS #OrganDonation #DonateLife #RecycleYourself #DoubleLungTransplant #Love
A post shared by Caleigh Sarah Haber (@fight2breathe) on Oct 25, 2017 at 9:18pm PDT
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