Hunter Syndrome

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    Boy Told He Wouldn’t Live to Be a Teenager Graduates From High School

    Khye Jessup, who has a rare genetic disorder with a short life expectancy, at graduation. Khye Jessup, a 20-year-old in Greensboro, N.C., was born with Hunter syndrome, a rare genetic disorder marked by a missing enzyme that causes cognitive and physical regression during the toddler years. “I suspected something was wrong when Khye was 6 months old — he looked a little different than the other kids — but doctors kept assuring me he was fine,” Khye’s mom, Shelley Mason, 42, a public health nur